Introduction
Child and adolescent mental health services in Uganda have vastly improved over the last decade and ACT International has played a part in this change, training more than 160 health and social care professionals to deliver a child-centred treatment for trauma - Child Accelerated Trauma Technique (CATT). There are now CATT counsellors in every region of the country helping trafficked children, children suffering from domestic violence and abuse and those who've fled conflict in neighbouring countries.
The aim of this report is to assess the impact of ACT International's work in Uganda, focussing on the clinical benefits of CATT in treating symptoms of PTSD and the challenges of implementing CATT on the ground.
An overview of child and adolescent mental health services in Uganda
Over half of Uganda's population are under 15 years old and many have been subjected to traumatic events leading to a high rate of mental health disorders. The country's history of prolonged armed conflicts such as the war involving the Lord's Resistance Army, has left a legacy of children who grew up in a brutalised environment without their parents and who face discrimination and social stigma. Uganda's open-door policy has swelled the number of orphans bringing almost one and a half million refugees from countries like Sudan, Rwanda, Burundi, Ethiopia, Somalia and the Democratic Republic of Congo. According to the Ugandan Government, the burden of mental and neurological disorders has been increased "by the effects of war, exposure to violence including defilement, poverty, physical, emotional and sexual abuse, commercial sex and sex for survival, addiction to substances such as alcohol and cannabis, infection or being affected by HIV/AIDS and other disease like malaria resulting in psychological and/or intellectual handicap, bereavement and separation." Depression among secondary school students and anxiety disorders, particularly among girls, are high.
When ACT International (then Luna Children's Charity) began to work in Uganda in 2011, child and adolescent mental health services were inaccessible to most Ugandans and there was only one psychiatrist specialising in child and adolescent mental health. From 2012, ACT International worked as a partner of East London NHS Foundation Trust on its mental health link with Butabika National Referral Hospital in Kampala, training the country’s first children’s mental health specialists. Dr Godfrey Zaari Rukundo, one of the first to be trained in CATT, was among those who persuaded the Ministry of Health to support the two-year children’s mental health diploma course, accredited by Mbarara University of Science and Technology where he is Head of the Department of Psychiatry. CATT was an important element of the course within the module on childhood trauma.
Although CATT training is specifically designed to help children suffering from PTSD, a social impact assessment carried out in 2016 showed that it increased counsellors' psycho-social knowledge, improved their understanding of children's rights and promoted child-centred practice. Since then, more than 160 CATT counsellors have been trained, and 14 have themselves become trainers, spreading practice across the country.
In 2017, the Ugandan Ministry of Health set out ambitious policy guidelines for child and adolescent mental health;but the recent pandemic offers a stark reminder that there is still much to be done. School closures, social distancing, curfews, and lockdown led to an upsurge in domestic violence, child abuse, teenage pregnancies and suicide yet, far from throwing more resources into mental health, administrators did the opposite. In most of the country's regional referral hospitals, wards for psychiatric patients were turned into COVID wards, and psychiatric patients could not access services.
In most cases, the service is now back to a pre-pandemic norm but there are still major gaps which reduce a child or young person's chances of recovery. Child and adolescent services (CAMHS) are not integrated into primary health care, hospitals and clinics remain underfunded and understaffed, and mental health remains low on a list of priorities competing for limited funds with more obvious killer diseases such as malaria and HIV/AIDS. An additional problem is the lack of public awareness and the stigma attached to mental ill health. If parents do seek help, it tends to be traditional healers to whom they turn.
Methodology
In May 2022, Uganda's first two-day conference for CATT counsellors took place at Butabika National Referral Hospital. Of the 38 practitioners who attended, 26 (seven women and 19 men) filled in a questionnaire about their practice, representing almost half the country's practising CATT counsellors. They were first trained in CATT between 2012 and 2022. Respondents were asked to describe their professional role or job title. They fall broadly into two categories: 15 are specialists who have a degree level qualification which entitles them to work as clinical psychologists, psychiatric clinical officers (PCOs), psychosocial counsellors and psychiatric nurses. There are 11 non-specialists who work with children, for instance as general nurses or therapists, social workers and teachers.
Job title | Number | Proportion |
---|---|---|
Non-specialist | 11 | 42% |
Nurse | 4 | 15% |
Child development worker | 1 | 4% |
Nursing officer | 1 | 4% |
Occupational therapist | 1 | 4% |
Psychosocial counsellor | 1 | 4% |
Social worker | 1 | 4% |
Teacher | 1 | 4% |
Therapist | 1 | 4% |
Specialist | 15 | 58% |
PCO | 4 | 15% |
PCO (CAMHS) | 2 | 8% |
Clinical psychologist | 2 | 8% |
Psychiatric nurse | 2 | 8% |
CPO (CAMHS) | 1 | 4% |
Principal clinical psychologist | 1 | 4% |
Principal PCO | 1 | 4% |
Principal PCO (CAMHS) | 1 | 4% |
Psychologist | 1 | 4% |
Total | 26 | 100% |
Respondents were first trained in CATT between 2012 and 2021 and now work in a variety of settings. 62% work in regional referral hospitals, others work for humanitarian organisations in refugee camps, schools, or centres for disadvantaged children. Most practise CATT as part of their official duties while others have chosen to do so on a voluntary basis.
Fourteen counsellors, including two who were not among the respondents, were subsequently interviewed. The researcher was also given access to case records from counsellors working for CRESS UK on the South Sudanese border. She interviewed four children in Kisubi and Lira who have been treated with CATT for post-traumatic stress disorder (PTSD) as well as their counsellor and carers. This report summarises the findings of that research. Authored by a trustee of ACT International, it cannot be regarded as an independent survey but is presented in the hope that, together with partner organisations, ACT International can draw on the Ugandan experience to evaluate and improve our training and the practice of CATT worldwide.
Children’s Accelerated Trauma Technique
CATT enables children to reprocess traumatic memories through imaginative play, combining play and arts therapy with trauma focussed cognitive behavioural therapy (CBT) and children's rights principles. There are 12 stages which include finding a safe and comfortable setting for the child, carrying out an assessment of basic needs and working with the child to set measurable and realistic goals. Symptoms of PTSD are measured before and after therapy.
In the memory processing phase of CATT, children are asked to compile a list of characters involved in the traumatic events and to choose a safe place for the beginning and end of the narrative. They then create those characters out of available materials and use them to enact the story. After reaching the end, they are asked to re-tell the story backwards, a process which uses working memory. The therapist asks them to repeat this forward and backward narrative until the emotional response is reduced or eliminated.
This is followed by a second phase of treatment in which the child tells a new story which re-frames the experience and provides it with a new, more positive meaning which is empowering and more easily recalled.
Rate of referrals
For qualified psychologists working in a medical setting, CATT is one of many treatments they may offer to children and adolescents in their care whereas, for non-specialists in the community, it may be the only psychological therapy they ever use. Asked how many children were referred to them in a typical year, answers vary widely from zero to 62, with half of all respondents (50%) estimating five or fewer referrals in a year. Those who provided higher numbers may have been answering in terms of the numbers referred to their place of work. The age range of young people referred was between 5 and 22 years old with girls and young women representing a slightly higher proportion than males.
In a typical year how many children were referred to you for CATT counselling? | Number referred | Proportion |
---|---|---|
0 to 5 | 13 | 50% |
6 to 10 | 2 | 8% |
11 to 15 | 4 | 15% |
16 to 20 | 1 | 4% |
21 to 25 | 1 | 4% |
26 to 30 | 1 | 4% |
30+ | 4 | 15% |
When interviewed, some counsellors working in refugee camps reported being overwhelmed by the number of children suffering from PTSD.
While some were unable to deal with the number of cases presented, others wished more children were brought to them for treatment. One reason for a comparatively low rate of referrals was stigma or a lack of a public awareness about mental illness and available treatments. Counsellors reported that symptoms in children tended to be misinterpreted as bad behaviour punishable by beating and those parents who sought help often turned to traditional healers or expected to be given medicine with quick results rather than a more time-consuming course of therapy. As one respondent put it, "Some family members do not believe talking is treating".
Symptoms of PTSD
Asked what symptoms of PTSD their clients presented, the most frequently mentioned in the questionnaire was ‘avoidance’ (used 16 times across 26 questionnaires), meaning that children avoided places and people that brought back memories of the traumatic event. Other words that cropped up often were 'nightmares’ (10) and ‘flashbacks’ (11) and disturbed ‘sleep’ (10). Counsellors also described hyper arousal, negative moods, aggression, a fear of being alone, startled reactions to stimuli, a loss of interest in things they once loved and excessive worries.
Measuring the effectiveness of CATT
Respondents reported having between four and 11 sessions with a child to complete CATT, with the average being 6.8.
What is the average number of session you have with a child to complete CATT? | ||
---|---|---|
Number of sessions | Number of responses | Proportion |
4 | 4 | 16% |
5 | 3 | 12% |
6 | 5 | 20% |
7 | 3 | 12% |
8 | 4 | 16% |
9 | 4 | 16% |
10 | 1 | 4% |
11 | 1 | 4% |
Total | 25 |
As a measure of CATT's effectiveness, counsellors use the Children's Revised Impact of Event Scale, CRIES-8, devised by the Children and War Foundation to screen children at risk of PTSD. Records of cases kept by the CRESS team of nine volunteer counsellors working with refugees from South Sudan show a remarkably high success rate with reduced symptoms of PTSD in 858 cases between November 2019 and December 2021.
Similarly, eight case histories recorded by Sister Florence Achulo-Osara, director of the Bishop Asili Counselling, Rehabilitation and Community Centre in Lira, show impressive reduction in the CRIES- 8 score post CATT. Four of the children referred to her for CATT therapy took part in this research, along with parents or carers. When asked if they could remember how they felt before the therapy and shown a chart of emoji faces with a scale of emotions from sad to happy, three pointed to 0 and one child pointed to 2 at the bottom of the scale. Asked to show how they felt now, they all pointed to 10 on the scale – the happiest face. As well as having their traumatic symptoms reduced, they all talked about the new opportunities they had been given as a result of Sister Florence’s intervention.
The questionnaire presents a more nuanced picture of outcomes. Counsellors were asked how many children responded well to CATT, as shown by CRIES-8 scores or feedback from family and others. Given a scale of answers from ‘a few’ to ‘some’ and ‘many’, a little over half of respondents reported that many children responded well.
Although the sample size is too small to infer significant differences, results to this question did vary somewhat based on other variables. A slightly higher proportion of respondents based in regional referral hospitals gave more positive assessments than those based in other predominately non-clinical or refugee settings, with 93% reporting some or many positive responses compared to 80% for other locations.
Results to the same question based on respondents’ job title also varied, although less clearly. Paradoxically, while those in specialist roles were more likely to say that ‘many’ children responded well (69% compared to 36% for non-specialists), specialists were more likely than non-specialists to report that ‘few’ children responded well (15% compared to 9%).
A detailed account of individual workplaces and systems throws some light on these variations. For instance, counsellors working in regional referral hospitals tend to be more highly qualified and better supported in terms of supervision and peer support, which may attribute for a higher success rate. Many of the counsellors who were interviewed stressed the importance of supervision or peer support, both to improve their practice and avoid burn-out.
Benefits of using CATT
Asked what they liked about using CATT, the most frequent responses in the questionnaire related to it being child-centred (19% of responses), its narrative method (19%), and that it was effective (9%).
Most counsellors reported that CATT had an impact not only on individual children but on their families, for instance by relieving symptoms of trauma, helping the child return to school, improving relationships and teaching parenting skills.
In addition to its therapeutic benefits, a number of counsellors said in their interview that CATT training had changed their entire working practice, highlighting the value of psychoeducation as a means of sensitising the wider community to issues of mental health and trauma. This had improved their professional standing and self-esteem.
Challenges of using CATT
Respondents to the questionnaire were asked to list some of the challenges of using CATT. Again, their answers and the evidence of detailed interviews shed light on structural issues as well as individual caseloads.
In a country with about 40 living languages and a large refugee population, it is perhaps not surprising that language was seen as one of the biggest challenges, mentioned almost equally by those working in referral hospitals and those in other settings. One counsellor pointed out that some local languages lacked words such as 'depression' and in some rural districts there was no one who could translate into English. Those working in refugee camps reported having to rely for translation on a child's relative or other refugees. Non-specialists and respondents working outside a hospital setting were more likely to mention the complexity of cases as well as the number of sessions required and challenges with transport.
A number of counsellors are volunteers who have to fit their CATT sessions in between regular duties. Apart from the counsellors employed by CRESS, most work singly without the benefit of a team. Others are employed on short-term contracts. Conditions of employment have a profound effect on their practice.
The less time counsellors are allocated for each case and the further they have to travel, the more likely they are to see the number of sessions required as a problem. Several reported that school administrators and parents would often cut the therapy short because they wanted a child back in class.
The cost of transport and distances covered present further challenges, particularly for counsellors working in rural areas or refugee settlements. Non-specialists and volunteers may also struggle to balance the needs of their CATT clients with professional and personal commitments.
The CATT protocol requires counsellors to conduct a needs assessment and ensure that basic needs are met, such as food, water, shelter, clothing and bedding. They work with systems around the child to build resilience and a sense of sustained well-being. In a country where a quarter of the population live below the poverty line and in large refugee settlements where people struggle for limited resources, this can present an almost insurmountable challenge.
Retention of CATT counsellors
In order to meet the selection criteria for CATT training, people must have a diploma or higher qualification, show evidence that they are working with children and, most importantly, have the right attitude and interest. Recruitment has accelerated and 14 outstanding counsellors have now become qualified to train others. However, as in other health service sectors, retention remains a problem. Only about half of the 160 trained counsellors are still practising.
The Ugandan Ministry of Health's 2017 policy guidelines for child and adolescent mental health mark a significant advance but implementation is patchy to say the least. Mental health remains a low priority when it comes to government spending, and child and adolescent mental health is still not properly integrated into healthcare.
It is not just government departments that prioritise physical over psychological well-being. In the non-government sector, mental health tends to be low on the list of priorities, representing only 0.3% of development assistance for health This affects the choice and structure of humanitarian projects.
Memorable outcomes
Despite these difficulties, CATT counsellors are overwhelmingly positive about their role. In the questionnaire they were asked to describe any outcomes they were particularly proud of. Their responses shed light on the range of traumatic events that can blight children's lives and underline the value of their work.
Conclusions and areas for development
When so many children and young people in Uganda are exposed to traumatic events which can blight their lives, there is an urgent need for effective and accessible models of care. As this research shows, CATT has become an important tool for mental health professionals and others working with children. The number of counsellors and trainers has steadily increased and respondents to the questionnaire are consistently positive about the therapy, emphasising its child-centred approach and use of non-verbal narrative based on play. When asked how many children responded well to CATT – “many, some or few” - over half the respondents said "many". The overwhelming majority believe that it has a positive impact on the child’s family and some think it benefits the community at large by increasing an understanding of mental health. During interviews, several counsellors remarked on the improvement CATT training had had on their practice.
Although they are overwhelmingly positive about the CATT protocol and the therapeutic technique itself, many face challenges when using it on the ground, such as the need to find reliable translators, the cost of transport and the number of sessions needed to complete a case.
Some counsellors say they have not received as many referrals as they would wish and call for more public awareness campaigns, but others report being overwhelmed by cases. Overload is a particular problem for those working in refugee communities, where levels of post-traumatic stress are exceptionally high. These environments may also lack food, clean water and shelter, making it almost impossible for counsellors to meet a child’s basic needs as the CATT protocol requires. One of those interviewed said that it was sometimes hard even to ensure a child’s safety.
Many of the challenges highlighted in the research are structural, relating to funding priorities and conditions of employment and are possibly a contributing factor to the drop-out rate among trained counsellors, which stands at about half. Child and adolescent mental health is not yet fully integrated into medical services so practitioners have to divert to another type of medicine if they want to gain promotion. Counsellors with other professional responsibilities such as general nursing or teaching may struggle to find time for voluntary work. Time may also be a problem for counsellors employed by humanitarian organisations on short term contracts*. In addition, non specialist CATT counsellors may lack the supervision and peer support needed to improve practice and prevent burn-out. They are also more likely to face difficulties when treating children with complex trauma.
There are lessons to be learned from the two examples of working practice that are highlighted in this report. Outcomes recorded by the CRESS team in Northern Uganda and case notes from the Bishop Asil Counselling, Rehabilitation and Community Centre in Lira demonstrate a significant reduction in PTSD symptoms following CATT, a success reinforced by the testimony of four children and their carers who were interviewed for this research.
There are distinguishing features which help to make these results outstanding. Unlike most practitioners who took part in this research, those employed by CRESS work in a team, supporting each other and reporting to a co-ordinator who monitors their results and feeds them back to the charity. Although they are volunteers, they receive a modest remuneration and are provided with bicycles and mobile phones. As refugees themselves, they are thoroughly embedded in the community they serve.
As director of Bishop Asili Centre and a respected member of a religious community, Sister Florence is better placed than some other counsellors to ensure that a child’s basic needs are met. In Lira she can house children at the Centre and in Kisubi she has a network of foster parents to call on. The four children interviewed no longer showed symptoms of PTSD and their carers confirmed that they were able to play and go to school. Moreover, they were enjoying opportunities such as education and sport that would otherwise not have been available to them.
Many of the challenges facing CATT counsellors could be overcome if the Government of Uganda implemented its own policy guidelines on child and adolescent mental health. As a charity, ACT International is responsible for training counsellors who then go on to train others but has no responsibility for working conditions. It may be useful, however, to list areas of improvement that arise from the evidence given by counsellors in the course of this research.
CAMHS (with CATT) needs to be integrated into health system – with a recognised promotional ladder.
Non-specialist counsellors should be given time and space for their CATT work.
The number of counsellors needs to be increased to make existing workloads more manageable.
All counsellors should receive supervision and take part in peer group counselling to avoid drop -out and emotional fatigue.
Counsellors should monitor and report on outcomes and this information should be held centrally.
Counsellors need further training about complex health needs.
Volunteers need remuneration and help with costs.
Partner organisations / funders are needed who can help provide children’s basic needs, particularly in poor rural areas and refugee settlements.
More translators are needed.
Transport costs should be met.
Counsellors should be encouraged to increase public awareness of mental health issues through media outlets and forms of public engagement.
The CRESS team in Northern Uganda
In IDP and refugee settlements on the border between Uganda and Sudan, the UK-based charity, CRESS (Christian Relief and Education for South Sudanese) employs a team of nine trauma counsellors trained in CATT by ACT International. These counsellors work under the auspices of the Diocese of Liwolo exiled in Uganda, offering trauma therapy and emotional health guidance for a small remuneration of $15 a month. The most common causes of trauma they see are child neglect, rape and sexual abuse.
In two years of pandemic, between November 2019 and December 2021, they saw 858 children, whose treatment is documented in case files. All of them had high CRIES-8 scores at the first assessment, indicating a diagnosis of PTSD. After treatment with CATT, a marked reduction in CRIES-8 scores was seen in all cases, to below the threshold for PTSD, indicating significant improvement or total removal of many of the main symptoms of PTSD such as re-experiencing and avoidance. The large drop in mean scores indicates that CATT is a successful and appropriate technique for treating PTSD in these communities, and that this group of CATT counsellors is very effective.
The CRESS CATT model is exceptional for Uganda in having a dedicated team of practitioners, who are themselves refugees with first-hand experience of trauma who live in the communities they serve. They are led by a co-ordinator who travels across the West Nile district, monitoring progress and have the additional support of Fiona Sheldon, a psychotherapist who advises CRESS on mental health issues. Details of cases are sent to CRESS headquarters on a regular basis, giving the age and gender of each child, number of CATT sessions and CRIES-8 scores before and after therapy.
Although 20 counsellors completed the initial CATT training programme in 2018, within a year almost half had dropped out and others followed, perhaps daunted by the demanding nature of the work in refugee camps where the level of need is high but basic resources are in short supply. The nine that now remain are highly motivated.
In 2021 CRESS responded to requests for help by offering counsellors a monthly stipend of $15, paid every two months. The charity also provided gifts such as biscuits and pens for the children. To enable counsellors to cover the lengthy distances between settlements and remain in touch with children and their families, counsellors were equipped with bicycles and mobile phones. As a result, their motivation increased but so too did the number of referrals, bringing new pressures.
The ACT International training programme for CATT emphasises the need for self-care to avoid compassion fatigue or burn-out. Supervision is also an element of good practice. This is often a problem for isolated practitioners working outside a hospital setting but the CRESS model fosters a sense of co-operation and mutual support.
The volunteer counsellors face additional pressures because they need to supplement their income in other ways. The present co-ordinator is a church leader and his predecessor, Lulu Emmanuel, had to balance his CATT responsibilities with his job as a nurse and the need to grow food for his family. He would prefer his therapeutic role to be full-time.
Children's testimony
Four children were interviewed for this research, together with a parent or carer. All had been treated for trauma by Sister Florence Achulo Osara, a lecturer in psychology at the University of Kisubi where she trains and supervises other CATT counsellors. Her clinical practice includes outreach work in the Kisubi district, where many children live on the street where they become drawn into child labour, gangs and drug or substance abuse. She also runs the Bishop Asili Counselling, Rehabilitation and Community Centre in Lira, an area of Northern Uganda which is still suffering from the legacy of war with the Lord's Resistence Army and where many children are trafficked into the sex trade or domestic servitude.
The children spoke openly about the abuse they had suffered and about their new lives and hopes for the future. Thirteen-year-old Okhot* ran away from his violent father and was working on a construction site when Sister Florence took him in, placed him with a foster mother and starting CATT sessions. The same foster mother was looking after a small girl called Atim who had been physically abused by her stepmother, forced to do menial tasks and referred to as a dog. In Lira, Sister Florence rescued some girls who were about to be trafficked to Kenya and brought them to the Bishop Asili Centre. Among them was Omollo, who had difficulty sleeping and was always crying and running around so the others thought she was mad. When Sister Florence gained her trust, she discovered that the child lived in extreme poverty and was traumatised after being abducted and taken into slave labour when she was only seven years old. Her disabled mother had been reduced to begging and neighbours had set fire to their home.
Following CATT protocol, Sister Florence ensured that the children felt secure and that their basic needs were met before taking them through the phase of re-processing memory. As a respected member of a religious community, she has several networks to draw on and can therefore offer children opportunities they previously did not have, which undoubtedly contributes to successful outcomes. In every case, after CATT their PTSD symptoms had been significantly reduced and they were able to function more or less normally and continue their studies. As part of the research, the children were shown a series of emoji faces charting a range of emotions from sad to happy. They made a clear distinction between their feelings before and after therapy, pointing to 0 or 2 at the bottom of the scale when describing the past, and 10 - the smiling face - for now. Their carers confirmed the change in their mood and ability to cope with relationships and schooling.
The fourth child interviewed was Tomas who had been referred to Sister Florence for counselling in January 2022. He had been subjected to a vicious attack by his paternal grandmother, who threw liquid over his face which caused it to swell and left him unable to see. Although doctors had restored his sight, the mental scars remained.
Tomas was living with his mother and maternal grandmother. His father was frequently violent and had thrown them out of the family home. His mother explained that the paternal grandmother was jealous of the fact that she had given birth to a son who might inherit his father's land. She had threatened to kill Tomas and had tried poisoning him before the attack.
Sister Florence gained Tomas's trust by showing care, engaging him in activities like exercise and dancing and playing music until he relaxed and felt safe. An assessment of his basic needs showed that he did not have enough food, clothes or bedding and lacked privacy at home, so she brought him and his mother to the Bishop Asili centre. Following the CATT protocol, she explained the causes of his changed behaviour and how she could help him and together they set out some goals, such as being able to sleep soundly and interact with relatives and eventually return to school. She identified social workers and members of the community who could provide further support.
In the narrative phase of CATT, the child compiled a list of characters in his story and created them from bits and pieces provided by Sister Florence. He chose a safe place for the start of the narrative, and another for the end. In moving the characters through the story, she noticed several moments, or hotspots, when he became agitated or stuttered. She would then hurry him along so he did not become re-traumatised. Each time he completed the narrative, she would ask him to re tell it backwards, a process which requires reprocessing memories. In the next phase of treatment, he was asked to choose and make an imaginary character who could change the course of the story. Picking two pipe cleaners, he fashioned a pair of glasses which could protect his eyes and help him see.
Before CATT, Tom's CRIES-8 score of trauma symptoms was 32. Afterwards, it had fallen to 10 and more recently it is zero. He is now back in school and, like many young boys, his passion is football.
Asked what he felt before CATT and shown the emoji chart of emotions, Tomas pointed to 0 - the saddest. When asked how he feels now, he pointed to 10, the smiliest face. Then he ran off to play hopscotch with his friends.
*All the children’s names have been changed.